Disability-Related Organization Links

ADVOCACY

American Association for Homecare (AAHomecare)
www.aahomecare.org

ITEM Coalition (Independence Through Enhancement of Medicare and Medicaid)
(202) 446-6550
www.itemcoalition.org

AGING

Administration on Aging
U.S. Department of Health and Human Services
(202) 619-0724
www.aoa.gov

American Association for Retired Persons (AARP)
(888) 687-2277
www.aarp.org

Eldercare Locator
(800) 677-1116
www.eldercare.gov

National Resource Center on Supportive Housing and Home Modification
Andrus Gerontology Center
University of Southern California
(213) 740-1364
www.homemods.org

Paying for Senior Care
(641) 715-3900, Ext. 606151
www.payingforseniorcare.com

Rehabilitation Engineering Research Center for Technologies for Successful Aging with Disability
Rancho Los Amigos National Rehabilitation Center
www.isi.edu/research/rerc/

AICARDI SYNDROME

Our Aicardi Life
ouraicardilife.org

ALS

ALS Association
(800) 782-4747
www.alsa.org

ALZHEIMER'S

Alzheimer's Association
(800) 272-3900
www.alz.org

AMPUTATIONS

Amputee Coalition
(888) 267-5669
www.amputee-coalition.org

ARTHRITIS

Arthritis Foundation
http://www.arthritis.org

National Institute of Arthritis and Musculoskeletal and Skin Diseases
(877) 22-NIAMS
www.niams.nih.gov

ASSISTIVE TECHNOLOGY

ABLEDATA
(800) 227-0216
www.abledata.com

California State University Northridge (CSUN) Center on Disabilities
(818) 677-2578
www.csun.edu/cod

Cornucopia of Disability Information University at Buffalo
codi.tamucc.edu/assistiv.htm

Medline Plus: Mobility Aids
www.nlm.nih.gov/medlineplus/mobilityaids.html

National Registry of Rehabilitation Technology Suppliers (NRRTS)
(800) 976-7787
www.nrrts.org/consumers

Trace Center
College of Engineering
University of Wisconsin-Madison
(608) 262-6966
www.trace.wisc.edu

University Of Montana
Rural Institute/MonTECH
(877) 243-5511
montech.ruralinstitute.umt.edu 

WheelchairNet
www.wheelchairnet.org

AUTISM

Autism Society
(800) 3AUTISM
www.autism-society.org

Global Autism Collaboration
www.autism.org

AUTOMOTIVE ACCESSIBILITY

Association for Driver Rehabilitation Specialists (ADED)
(866) 672-9466
www.driver-ed.org

Leland West Adaptive Driving Aids resource
www.lelandwest.com/adaptive-driving-aids-for-your-car.cfm

National Mobility Equipment Dealers Association (NMEDA)
(866) 948-8341
www.nmeda.org

BRAIN/SPINAL CORD INJURY

Apparelyzed
www.apparelyzed.com

Brain Injury Association of America
(800) 444-6443
www.biausa.org

Brain Trauma Foundation
(212) 772-0608
www.braintrauma.org

A Celebration of Wheels
http://lenmac.tripod.com/

Christopher & Dana Reeve Foundation
(800) 225-0292
www.christopherreeve.org

Darrell Gwynn Foundation
(954) 792-7223
darrellgwynnfoundation.org

Facing Disability
(312) 284-2525
www.facingdisability.com

Foundation for Spinal Cord Injury Prevention, Care & Cure
(800) 342-0330
www.fscip.org

Life Rolls On Foundation
(310) 807-5488
www.liferollson.org

The Miami Project to Cure Paralysis
(800) STAND UP
www.miamiproject.miami.edu

Mike Utley Foundation
www.mikeutley.org

National Spinal Cord Injury Association
www.spinalcord.org

Ralph’s Riders
www.ralphsriders.org

Sam Schmidt Paralysis Foundation
(317) 236-9999
www.samschmidt.org

Spinal Cord Injury Fund
(949) 635-1970
www.SCISpecialFund.org

The Spinal Cord Injury Zone
www.thescizone.com

Users First
(718) 803-3782
www.usersfirst.org

Walk and Roll Foundation
(855) 925-9255
http://walkandrollfoundation.org

CANCER

American Cancer Society
(800) 227-2345
www.cancer.org

CAREGIVER SUPPORT

Care Givers blog
www.caregivers.com

Caregiver Action Network
(301) 942-6430
caregiveraction.org

Caregiver List: State Listings
www.caregiverlist.com

Certified Care
(216) 282-5248
www.certifiedcare.org

Empowering Caregivers
www.care-givers.com

Family Caregiver Alliance
(800) 445-8106
www.caregiver.org

National Alliance for Caregiving
www.caregiving.org

VA Caregiver Support
(855) 260-3274
www.caregiver.va.gov

CEREBRAL PALSY

Alternating Hemiplegia of Childhood Foundation (AHCF)
www.ahckids.org

Children's Hemiplegia & Stroke Association
www.chasa.org

National Institute of Neurological Disorders and Stroke
(800) 352-9424
www.ninds.nih.gov/disorders/cerebral_palsy/cerebral_palsy.htm

Pedal-with-Pete Foundation
http://pedal-with-pete.org

United Cerebral Palsy
(800) 872-5827
www.ucp.org

CHARITABLE ORGANIZATIONS

Easter Seals Disability Services
(800) 221-6827
www.easter-seals.org

March of Dimes
(914) 997-4488
www.modimes.org

CHAIRI MALFORMATION

The Chiari Institute
(516) 570-4400
www.chiariinstitute.com

CHILDREN WITH DISABILITIES & FAMILIES

The Access Board (ADA & Play Area Information)
(800) 872-2253
www.access-board.gov/guidelines-and-standards/recreation-facilities

American Camp Association
(800) 428-2267
www.acacamps.org

Boundless Playgrounds
(423) 648-5619
www.boundlessplaygrounds.org

Canine Angels Service Team
(541) 846-6400
www.canine-angels.org

Canine Companions for Independence
(866) 224-3647
www.cci.org

Canines for Disabled Kids
(978) 422-5299
www.caninesforkids.org

Children's Disabilities Information
www.childrensdisabilities.info

Council for Exceptional Children
(888) 232-7733
www.cec.sped.org

Council of Parent Attorneys and Advocates
www.copaa.net

Individuals with Disabilities Education Act (IDEA)
idea.ed.gov

KidsHealth From Nemours: Wheelchairs
http://kidshealth.org

Kids Mobility Network
(303) 242-8281
www.kidsmobility.org

Kids’ Quest: Mobility (CDC)
www.cdc.gov/ncbddd/kids/mobility.html

National Ataxia Foundation
(763) 553-0020
www.ataxia.org

Center for Parent Information and Resources
www.parentcenterhub.org/resources

My Child Without Limits
www.mychildwithoutlimits.org

Pediatric Brain Tumor Foundation
(800) 253-6530
www.pbtfus.org

Texas Scottish Rite Hospital for Children
(800) 421-1121
www.tsrhc.org

Through the Looking Glass
(800) 644-2666
http://lookingglass.org

Victory Junction
(877) VJG-CAMP
www.victoryjunction.org

The World Playground. Parks & Recreation Products and Services Web Directory
http://world-playground.com/accessible.htm

CYSTIC FIBROSIS

Cystic Fibrosis Foundation
(800) 344-4823
www.cff.org

DENTAL HEALTH

CP Rochester Dental Clinic
(585) 402-7448
www.cprochester.org

National Institute of Dental and Craniofacial Research
(301) 496-4261
www.nidcr.nih.gov

PROVAIL Johnny Johnson Memorial Dental Clinic
(206) 632-2612
www.provail.org/dentalclinic.php

University of Minnesota Physicians Dental Clinic
(612) 659-8689
www.umphysicians.org/Clinics/dental-clinic/index.htm

DIABETES

American Diabetes Association
(800) DIABETES
www.diabetes.org

Juvenile Diabetes Research Foundation International
(800) 533-CURE
www.jdrf.org

DISABILITY ORGANIZATIONS

American Association of People with Disabilities
www.aapd.com

Kessler Foundation
(973) 324-8362
http://kesslerfoundation.org

PossAbilities
(507) 281-6116
www.possabilities.org

DISASTER PLANNING

Research & Training Center on Independent Living
(785) 864-4095
www2.ku.edu/~lsiprepared/

EMPLOYMENT

Association of People Supporting Employment First (APSE)
(301) 279-0060
www.apse.org

Disabled Person
www.disabledperson.com

Hero Hire Health
www.herohealthhire.com

EVENTS/SHOWS

Abilities Expo
www.abilitiesexpo.com

National Veterans Wheelchair Games
(817) 673-2812
www.wheelchairgames.org

Technology & Persons with Disabilities Conference California State University (CSUN) Northridge Center on Disabilities 
(818) 677-1200
www.csun.edu

World of Possibilities Expo
(866) 227-4644
http://expo.caringcommunities.org

FIBRODYSPLASIA OSSIFICANS PROGRESSIVA

International Fibrodysplasia Ossificans Progressiva Association
(407) 365-4194
www.ifopa.org

FINE ARTS

Association of Mouth and Foot Painting
www.vdmfk.com

Coalition for Disabled Musicians
(631) 586-0366
www.disabled-musicians.org

Dancing Wheels Company & School
(216) 432-0306
www.dancingwheels.org

Department of VSA and Accessibility at the John F. Kennedy Center for the Performing Arts
(800) 444-1324
www.kennedy-center.org/education/vsa/

Drake Music
www.drakemusic.org

National Arts & Disabilities Center University of California, Los Angeles
(800) UCLA-MD1
www.semel.ucla.edu/nadc

U.S. Handicapable Square Dancing Association
www.ushandicapable.org

GOVERNMENT AGENCIES

Disability.gov
https://www.disability.gov

National Council on Disability
(202) 272-2004
www.ncd.gov

National Institutes of Health
www.nih.gov

U.S. Department of Health & Human Services
(877) 696-6775
www.hhs.gov

U.S. Department of Justice
Disability Rights Section
Civil Rights Division
(800) 514-0301
www.justice.gov/crt/about/drs/

HEART DISEASE

American Heart Association
(800) AHA-USA1
www.heart.org

HEREDITARY DISEASES

Hereditary Disease Foundation
(212) 928-2121
www.hdfoundation.org

HOME ACCESSIBILITY

Accessible Home Improvement of America
(877) 404-2442
accesshomeamerica.com

Architecture for Humanity
www.architectureforhumanity.org

Fair Housing Accessibility First
(888) 341-7781
www.fairhousingfirst.org

National Association of Home Builders
(800) 368-5242
www.nahb.org

National Center on Accessibility
(812) 856-4422
www.indiana.edu/~nca/

National Resource Center on Supportive Housing and Home Modification
(213) 740-1364
www.homemods.org

HUNTINGTON'S DISEASE

Huntington's Disease Society of America
(888) HDSA-506
www.hdsa.org

MUSCULAR DYSTROPHY

Cure Duchenne
(949) 872-2552
www.cureduchenne.org

FacioScapuloHumeral Muscular Dystrophy Society
(617) 658-7878
www.fshsociety.org

Muscular Dystrophy Association
(800) 572-1717
www.mda.org

Parent Project Muscular Dystrophy
(800) 714-5437
www.parentdmd.org

MULTIPLE SCLEROSIS

MS World
www.msworld.org

Multiple Sclerosis Association of America
(800) 532-7667
www.msaa.com

Multiple Sclerosis Foundation
(888) 225-6495
www.multiplesclerosisfoundation.org

National Multiple Sclerosis Society
(800) 344-4867
www.nationalmssociety.org

NUTRITION

Choose MyPlate
www.choosemyplate.gov

Eat Right, Academy of Nutrition and Dietetics
www.eatright.org/public/

OSTEOGENESIS IMPERFECTA

Osteogenesis Imperfecta Foundation (OIF)
(800) 981-2663
www.oif.org

OSTEOPOROSIS

National Osteoporosis Foundation
(800) 231-4222
www.nof.org

PARKINSON'S DISEASE

National Parkinson Foundation
(800) 473-4636
www.parkinson.org

Parkinson's Disease Foundation
(800) 457-6676
www.pdf.org

POST-POLIO

Polio Survivors Network
www.poliosurvivorsnetwork.org.uk

Post-Polio Health International
(314) 534-0475
www.post-polio.org

Post-Polio Syndrome Central
www.skally.net/ppsc/

RETT SYNDROME

International Rett Syndrome Association
(800) 818-RETT
www.rettsyndrome.org

SPINA BIFIDA

Spina Bifida Association
www.spinabifidaassociation.org

SPINAL MUSCULAR ATROPHY

Cure SMA
(800) 886-1762
curesma.org

Fight SMA
www.fightsma.org

Spinal Muscular Atrophy Foundation
(877) FUND-SMA
www.smafoundation.org

SPORTS & RECREATION

American Association of Adapted Sports Programs
www.adaptedsports.org

American DanceWheels Foundation
www.americandancewheels.com

AXIS Dance Company
axisdance.org

Challenged Athletes Foundation
(858) 866-0959
www.challengedathletes.org

Dancing Wheels
www.dancingwheels.org

Disabled Sports USA
www.dsusa.org

INTENNIS
www.intennis.com

International Tennis Federation
www.itftennis.com/wheelchair/

National Wheelchair Basketball Association
(719) 266-4082
www.nwba.org

Sports Training and Athletic Competition
www.makoa.org/sports.htm

Super Chairing
(224) 210-2288
www.extremechairing.com

Swim with Mike
(213) 740-4155
swimwithmike.org

U.S. Electric Wheelchair Hockey Association PowerHockey
(763) 535-4736
www.powerhockey.com

U.S. Paralympics
www.teamusa.org/US-Paralympics.aspx

U.S. Power Soccer Association
www.powersoccerusa.net

U.S. Quad Rugby Association
www.quadrugby.com

U.S. Tennis Association
www.usta.com/Play-Tennis/Wheelchair-Tennis/Wheelchair/

Wheelchair & Ambulatory Sports U.S.A.
(732) 266-2634
www.wsusa.org

STROKE

National Institute of Neurological Disorders and Stroke
(800) 352-9424
www.ninds.nih.gov

National Stroke Association
(800) STROKES
www.stroke.org

TAX ASSISTANCE

Allsup Free Tax Filing Assistance
www.allsup.com

TRAVEL

Access-Able Travel Source
(303) 232-2979
www.access-able.com

Amtrak (train)
www.amtrak.com

Carnival Cruise Lines
(888) 227-6482
www.carnival.com

Centers for Disease Control and Prevention (CDC) Travelers' Health
wwwnc.cdc.gov/travel/

Global Access News Disabled Travel Network
www.globalaccessnews.com

Open Doors Organization
http://opendoorsnfp.org

Princess Cruises
(661) 284-4408
www.princess.com

U.S. Department of Transportation
(855) 368-4200
www.dot.gov

Wheelchair Getaways
(800) 642-2042
www.wheelchairgetaways.com

World Travel Guide
www.worldtravelguide.net

VETERANS' SERVICES

Disabled Veterans of America
(877) 426-2838
www.dav.org

Paralyzed Veterans of America
(800) 232-1782
www.pva.org

United Spinal Association
(800) 404-2898
www.unitedspinal.org

Wounded Warrior Project
(877) 832-6997
www.woundedwarriorproject.org

WOMEN WITH DISABILITIES

Center for Research on Women With Disabilities (CROWD)
(713) 799-5086
www.bcm.edu/crowd/

Mobile Women
www.mobilewomen.org