MDA 2013 Walk Season Primed to Kick Off

The 2013 Muscular Dystrophy Association Muscle Walk season is in high gear. More than 50,000 people have committed to support the nationwide walks.

Hunter Harrison uses iPad

Is the iPad the Newest AAC Device?

Schools in Kentucky are using the iPad to help children with communication disabilities speak.

Vitamin D May Have Role in Mobility Disabilities

Vitamin D, that little nutrient found in milk and developed by exposure to the sun, might be key to preventing mobility impairments, according to new research from Wake Forest Baptist Medical Center.

Spinal Muscular Atrophy Gene Mutation Identified

Scientists at Cedars-Sinai Medical Center have uncovered a gene mutation responsible for spinal muscular atrophy with lower extremity predominance (SMA-LED).

Families of Spinal Muscular Atrophy Sets Lineup for SMA Conference

The 2012 SMA Annual Conference kicks off June 21 in Bloomington, Minn.

Seating the pelvis

The Trouble With Sitting

How a Good Seating and Positioning System Is Key to Independence and Quality of Life

The Mobility Project asked Susan Cwiertnia, PT, MS, clinical specialist at Varilite, to discuss the importance of proper seating and positioning.

Ultrasound of Fetal Spine Development


President of FSMA Discusses Spinal Muscular Atrophy Facts

The Mobility Project recently had the opportunity to discuss spinal muscular atrophy (SMA) with Families of Spinal Muscular Atrophy (FSMA) President Kenneth Hobby.

PPMD Advocacy Conference

Parent Project Muscular Dystrophy Advocates Urge Continued Funding in Washington

Nearly 80 parents, grandparents and relatives of boys with the most common form of muscular dystrophy attended the Parent Project Muscular Dystrophy 13th annual Advocacy Conference in Washington, D.C. in late February.

Families of Spinal Muscular Atrophy Releases ‘The Breathing Basics’ Booklet in Spanish

Families of Spinal Muscular Atrophy (FSMA) has released “The Breathing Basics Respiratory Care for Children with Spinal Muscular Atrophy” booklet in a Spanish version.

Faces of Spina Bifida

Online Magazine Unites Spina Bifida Community

Faces of Spina Bifida, an online magazine, seeks to celebrate the diversity among people with spina bifida.

Rise Above book cover

Book Review

In ‘Rise Above,’ Braun Offers Challenge to Readers

Story of Ralph W. Braun is a compelling story of facing life's challenges.

Grant to Fund PPMD Survey of People With Duchenne Muscular Dystrophy

Parent Project Muscular Dystrophy (PPMD)will survey and interview the Duchenne muscular dystrophy community regarding the clinical trial experience.