Families of SMA Is Now Cure SMA

Families of Spinal Muscular Atrophy has become Cure SMA. In a news release, Cure SMA President Kenneth Hobby and Chair of the Board of Directors Richard Rubenstein said of the new name, “It’s a big change that comes at a time of great progress and promise for our community. In the last decade, we’ve taken huge strides together, thanks to your passion and support, and today there are more clinical trials and more paths to a treatment than ever before.”

The organization says spinal muscular atrophy, which severely affects motor nerves in the spinal cord, is the number one genetic cause of death for infants. Families of SMA was a major supporter of research and drug trials to find a treatment and a cure for spinal muscular atrophy. Cure SMA (curesma.org) says it will spend an additional $1.8 million on research funding in the next year.

“With that sense of progress in mind, our board has thoughtfully examined Families of SMA’s communications, ultimately deciding on the changes we need to make to build on the successes we had,” Hobby and Rubenstein said in the announcement.