United Spinal Members to Roll on Capitol Hill

Next week the United Spinal Association and the National Spinal Cord Injury Association will Roll On Capitol Hill to speak up for the rights of people with disabilities.

The legislative event on June 25 and 26 in Washington, D.C., is in response to legislator’s challenges to the American Disabilities Act.

"We will not sit idle while policies are created that directly impact our lives,” said Lex Frieden, United Spinal’s chairman of the board. “Our motto is 'do nothing about us, without us,' and we plan to drive that message home at Roll on Capitol Hill."

According to Joseph Isaacs, United Spinal’s vice president of public policy, the organization will offer alternatives to policies that will protect the independence of people with disabilities and keep them out of institutions. In addition, United Spinal members will speak with legislators about funding cuts, new managed care programs that affect community-based services under Medicaid, and Medicare policies that limit access to equipment and therapies.

"We know that an informed, focused constituent can influence elected officials far better than any high-paid Washington, D.C., lobbyist," said Paul Tobin, United Spinal president and CEO.

On Monday, the event kicks off with a legislative policy conference with speakers Kathleen Martinez, assistant secretary of labor for the Office of Disability Employment Policy, and Ellen Nissenbaum, senior vice president for government affairs for the Center on Budget and Policy Priorities.

During Congressional visits on Tuesday, attendees will also talk about

  • Funding for rehabilitation and appropriate wheelchairs
  • Funding for medical equipment used by the spinal cord injury and disorders community, such as catheters
  • Prescription drug coverage
  • The cap on rehab payments for Medicare beneficiaries.

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